DYNAMIC stands for Dementia in YouNger Ages Mapping Ideal Care
The DYNAMIC study is funded by the National Institute for Health and Care Research (NIHR) Research for Social Care (RfSC) Programme through grant NIHR204266. The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
What is the DYNAMIC project about?
Through the DYNAMIC project we aim to investigate social care provision for people living with young onset dementia (where symptoms begin before the age of 65) and their main supporters. Social care includes support that isn’t medical which helps someone to live their life as fully as possible. We understand that people who develop dementia younger in life have needs that are specific to their life stage and these are seldom met. The aim of the project is to help improve this situation.
Involvement of Experts by Experience in the project
We have Experts by Experience on our project management group and steering group. They have been helping us with all aspects of the project. Julie Hayden and Elaine Daniels are members of the DYNAMIC project management team. One of the initial phases of the project is to interview people with young onset dementia and their main supporters. Julie and Elaine have been helping to improve the structure of the interview guides by running through them with the researchers. They have also helped us decide on the format of the interviews. One of their ideas was to give choice to the people with dementia as to whether they would like time to speak to the researcher alone, or whether they prefer to have a family member/friend with them throughout. They have also provided feedback on our survey which will be going out to social care professionals.
Current progress of DYNAMIC
The project is in its early stages and will run until October 2025.
We are currently recruiting people with young onset dementia and family members or friends who support someone with young onset dementia. We are interested in hearing about their needs, experiences and preferred support. People can express an interest to take part in this vital part of the project by completing this online form https://forms.office.com/e/WQfY1sYsCA?origin=lprLink
Shortly, we will also be launching a survey of staff with a role in or awareness of adult social care planning, provision, management or commissioning social care in England, from local authorities, third sector, private, mental health and primary care organisations.
After we have finished conducting the interviews and the survey, we will look at that information together and summarise the findings. We will present and discuss the findings with a diverse group of relevant stakeholders, including a mixture of professionals and people affected by young onset dementia. Two or three priority improvements will be identified by this group.
We will then search for good practice in these priority areas by looking at published evidence and interviewing professionals. Using this information, we will work with the stakeholders to produce recommendations and resources that address their priorities.
Findings from the project will be shared widely to influence people in practice, policy and those affected by young onset dementia.
Further information is available via the University website https://www.bradford.ac.uk/dementia/research/current-projects/dynamic/
Written by Helen Young, DYNAMIC project researcher.